The AVITA shared decision making tool was developed using a novel patient-centered approach to identify the most important treatment goals and values from patients themselves. These methods (cognitive mapping using the nominal group technique and card sorting) were initially developed and validated with patients with multiple sclerosis and then refined and applied to patients with chronic pain. We then adapted these methods to identify the goals and treatment features that matter most to patients with severe aortic stenosis. These findings were presented at the American College of Cardiology in 2021 and the subsequent manuscript is currently under review.
In addition to receiving a research award, these methods have has generated several scientific publications and presentations. We expect the current pilot study to be published as a separate scientific manuscript.
We welcome participating clinicians to be part of our future publications and presentations. If you are interested in joining our esteemed group of clinical investigators, please reach out to the study Principal Investigators, Nananda Col, MD, MPP, MPH, FACP, at info@valvesurvey.com to learn more.
Abstracts:
Megan Coylewright MD MPH, Brian R Lindman, Diana Otero Mostacero, Aaron Horne, Christina Fitzpatrick, Melissa Levack, Long Ngo, Melissa Beaudry, Nananda Col. What Matters Most to Patients with Aortic Stenosis? Framing the Conversation for Shared Decision Making. Presented at the ACC.21 (American College of Cardiology, 2021).
Manuscripts:
Nananda F Col, Diana Otero, Brian R Lindman, Aaron Horne, Melissa M. Levack, Long Ngo, Kimberly Goodloe, Susan Strong, Elvin Kaplan, Melissa Beaudry, Megan Coylewright. What Matters Most to Patients with Severe Aortic Stenosis when Choosing Treatment? Framing the Conversation for Shared Decision Making. Under review, 2021.
Peer-reviewed Manuscripts using these methods in other clinical arenas:
Col NF,Solomon AJ, Springmann V, Garbin C, Ionete C, Pbert L, Alvarez E, Tierman B, Hopson A, Kutz C, Berrios Morales I, Griffin C, Phillips G, Ngo L. Whose Preferences Matter? A Patient-Centered Approach for Eliciting Treatment Goals. Med Decis Making 2018; 38(1):44-55.
Col NF, Solomon AJ, Springmann V, Ionete C, Alvarez E, Tierman B, Kutz C, Berrios Morales I, Griffin C, Ngo L, Jones DE, Phillips G, Pbert L. Evaluation of a Novel Preference Assessment Tool for Patients with Multiple Sclerosis. International Journal of MS Care, 2018;20:260-267.
Col NF, Alvarez E, Springmann V, Ionete C, Berrios Morales I, Solomon A, Kutz C, Griffin C, Tierman B, Livingston T, Patel M, van Leeuwen D, Ngo L, Pbert L. A Novel Tool to Improve Shared Decision Making and Adherence in Multiple Sclerosis: Development and Preliminary Testing. Medical Decision Making Policy & Practice. 2019;4(2):2381468319879134. Published 2019 Oct 16. doi:10.1177/2381468319879134
Scientific Presentations using these methods in other clinical arenas
Solomon AJ, Qu H, Springmann V, Ionete C, Berrios Morales I, Pbert L, Anthony WA, Griffin CF, Tierman BN, Hopson AN, Phillips GA, Col NF. Differences between Patients’ and Providers’ Treatment Goals for Therapeutic Decisions in Multiple Sclerosis and Implications for Communication. Presented at the 7th Annual Health Literacy Research Conference, November 2, 2015, Washington, DC.
Col NF, Solomon A, Jones DE, Pbert L, Ionete C, Alvarez E, Berrios Morales I, Kutz C, Springmann V, Griffin C, Tierman B, Livingston T, Patel M, van Leeuwen D, Ngo L. Supporting Shared Decision Making for Multiple Sclerosis Patients and Providers: Sharing and Understanding Personal Preferences and Objectives Regarding Treatment (MS-SUPPORT). Presented at the National Quality Forum (NQF) Annual Conference, Next-Generation Innovator Abstract, Washington, DC. March 12-13, 2018.
Col NF, Solomon AJ, Springmann V, Ionete C, Alvarez E, Tierman B, Hopson A, Kutz C, Berrios Morales I, Griffin C, Ngo L, Jones DE, Phillips G, Pbert L. Evaluation of a Novel Preference Assessment Tool for Patients with Multiple Sclerosis; 9th International Shared Decision Making Conference, Lyon, France, July 4, 2017.
Nananda Col, Enrique Alvarez, Lori Pbert, Carolina Ionete, Idanis Berrios Morales, Andrew J. Solomon, Christen Kutz, Terrie Livingston, Jennifer Chester, Crystal Iwuchukwu, Long Ngo. Patient-Provider Communication about Multiple Sclerosis: The MS-SUPPORT Decision Aid. CMSC, Orlando, FL, October 2021.
Research awards
Herndon Award for Outstanding IJMSC Article, 2018, for manuscript entitled: “Evaluation of a Novel Preference Assessment Tool for Patients with Multiple Sclerosis”